Purpose: Review of GDPR definition, discuss balance between open science and privacy rights, assess the re-identification risks of various types of data: consider likelihood, feasibility and impact of re-identification with such data.
Yvonne Drost (Rijksdienst Cultureel Erfgoed), Henk van den Hoogen (UM, lid LCRDM adviesgroep), Jessica Hrudey (VU), Santosh Ilamparuthi (TUD), Toine Kuiper (TUE), Jan Lucas van der Ploeg (UMCG), Joan Schrijvers (WUR), Marjolein Sijbers-Klaver (UMCU), Erik Tjong Kim Sang (eScience), Niek van Ulzen (HvA), Arnold Verhoeven (UM)
In completion phase.
Oblong reference card (for download and print) providing 9 basic steps for pseudonymization at small-scale research:
Report (survey, recommendations)
Purpose: Present best practices of pseudonymization and key file management, collected by means of questionnaires and interviews.
Henk van den Hoogen (UM; adviesgroeplid), Erik Jansen (UM), Simone van Kleef (Antonius zh), Tineke van der Meer (HU), Martiene Moester (LUMC), Jan Lucas van der Ploeg (UMCG), Francisco Romero Pastrana (RUG), Jolien Scholten (VU), Leander van der Spek (UvH)
Focus group: Derk Arts (Castor), Marlon Domingus (EUR), Laura Huis in 't Veld (DANS), Nicole Koster (UT), Karin van der Pal (LUMC), Alfons Schroten (UM/MEMIC)
In completion phase.
Poster RDA 2019, Helsinki
Purpose: Deliver an inventory of knowledge and wishes concerning data curation. At a later stage, depending on the outcome of the first stage, an effort might be made to establish data curation standards.
Alastair Dunning (TUD; LCRDM Adviesgroep), Christina Elsenga (RUG), Nynke de Groot (EUR), Marjan Grootveld (DANS), Mijke Jetten (RU), Lena Karvovskaya (UU), Marcel Ras (NDE), Maaike Messelink (RU), Marcel Ras (NDE), Tina Reilink (RU), Inge Slouwerhof (RU), Madeleine de Smaele (TU Delft), Richard Visscher (Hogeschool InHolland)
The project proposal from phase (1) has been accepted by Research Data Alliance Europe, the task group has been expanded and will work towards furthering the adoption of the existing RDA recommendation "23 Things - Libraries for Research Data".
As a first intermediate deliverable the task group produced an update of "23 Things" for the Dutch community.
Poster (RDA 2019, Helsinki)
Mijke Jetten (RU), Lena Karvovskaya (UU; per 15/9/2019), Mateusz Kuzak (DTLS), Ellen Leenarts (DANS), Fieke Schoots (LEI), Carlos Teijeiro Barjas (SURF), Ingeborg Verheul (LCRDM), Iza Witkowska (UU; per 15/9/2019)
Feedback group: Barteld Braaksma (CBS), [Maria Cruz (VU; core team member untill 15/9/2019),] Ronald de Jong (CBS), Paula Martinez Lavanchy (TUD), Ruurd Schoonhoven (CBS), H.A. Teunissen (TiU), Ellen Verbakel (TUD), Yan Wang (TUD)
Next meeting: 31 December
Purpose: Propose criteria for a GDPR compliant virtual research environment as well as provide seven use cases.
Jeroen Beliën (VUmc), Ymke van den Berg (SURF), Erik van den Bergh (WUR), Jan Willem Boiten (namens Adviesgroep), Lolke Boonstra (TUD), Hans Brouwers (RUG), Mark Cole (SURF), Erik Flikkenschild (LUMC), Maarten Hoogerwerf (UU), Taco Horsley (UvA), Philipp Weissert (RUG)
Purpose: The idea is to work out a DPIA per scenario and to subsequently maintain it, so that for a majority of new research the selection of a scenario will be sufficient to be compliant.
Erik van den Beld (Saxion), Marlon Domingus (EUR), Pam Dupont (TiU), Raymond van Erkel (LEI), Jasper de Groot (UU), Inge Slouwerhof (RU), Cristina Montagner (RUG), Fieke Schoots (LEI), Marco Teunisse (UvA), Dick Vestdijk (HU), Raoul Winkens (UM)
Please, read the blog post byJasper de Groot.
Focus group: Jantien van Berkel (WUR), Mareike Boom (LEI), Martijn den Hamer (HvA), Jessica Hrudey (VU), vertegenwoordiger van NETHICS, Sander Nieuwenhuis (DSW sub-committee 'Scientific integrity, data storage and reproducibility'), Jacqueline Tenkink (UU)
First meeting: 14 January
The purpose of task groups is to formulate advice about specific tasks or to prepare national meetings..
Task groups are compiled per submitted issue on an ad-hoc basis by the advisory group. For the composition of a task group, candidates are drawn from the pool of experts, in casu from those who react to the specific calls for participation. These experts are supplemented with experts from the work field of advisory group members or experts from the pool. Task groups may be supported by an external consultant.
The task group members are motivated to work on a subject by a need to know, questions from their own institute and work environment or their daily work. The incentive here is: ‘this topic can also be applied in my own work environment’.
Purpose: Draw up an inventory of institute transcending research projects (use cases), call attention to hindrances, map which incompatible policies causes obstacles and describe implications and solutions.
Marlon Domingus (EUR), Peter Hinrich (SURF), Monic Hodes (UU), Patrick Hoetink (UT), Wouter Kool (LEI), Sonja Meeuwsen (LUMC), Judith Pijnacker (SURF), Jan Rijnders (RU), Jacquelijn Ringersma (WUR), Jolien Scholten (VU), Yan Wang (TUD), Iza Witkowska (UU)
Focus group: Barteld Braaksma (CBS), Toine Kuiper (TUE), Francisco Romero, Henk van der Zijden (Hanze)
Next meetings: 15 January
Maarten van Bentum (UT), Mijke Jetten (RU), Nicole Koster (UT), Toine Kuiper (TUe), Jan Lucas van der Ploeg (UMCG), Gera Pronk (ISeeTea), Martine Pronk (UU), Saskia Rademaker (HHS), Marta Teperek (TUD), Marijke Verheij (RUG), Marije van der Geest (UMCG). Namens de Adviesgroep: Henk van den Hoogen (UM), Annemie Mordant (Memic/UM), Jacquelijn Ringersma (WUR)
The task group was being supported by Melanie Imming (immingimpact.eu)