Guidelines Pseudonymization available
Everyone who carries out scientific research with (sensitive) personal data, faces the same
How can we guarantee to participants in research that their personal data will be stored safely? How do we ensure that directly identifiable personal data, necessary for communication and organization of research, are separated from research data?
Report of the task group Pseudonymization of the National Coordination Point Research Data Management (LCRDM) – Simone van Kleef, Jan Lucas van der Ploeg, Martiene Moester (et al)
In the period between February and June 2019, a LCRDM task group investigated if there are practical ways of pseudonymizing data for small-scale research which can also be used - relatively simply - by other institutions. In the absence of common practice around pseudonymization in the Netherlands, the task group offers with its report a set of 9 basic steps, meant for research support staff, researchers and/or research institutes that have little knowledge of pseudonymization and lack sufficient tooling/infrastructure.
The report also offers insight in the current situation around pseudonymization in the Netherlands and it contains some recommendations for follow up steps.
Report and handout are available in Dutch and in English on the website of LCRDM (Guidelines: Privacy) and the English version of the report also on Zenodo (doi.org/10.5281/zenodo.3571045). Printed copies of the report are available through the LCRDM office: lcrdm.nl/en/contact.
News item (pdf)
The LCRDM Task Group Pseudonymization:
Simone van Kleef (St. Antoniusziekenhuis), Jan Lucas van der Ploeg (Universitair Medisch Centrum Groningen), Martiene Moester (Leids Universitair Medisch Centrum – LUMC), Henk van den Hoogen (Universiteit Maastricht/liaison LCRDM Adviesgroep), Erik Jansen (Universiteit Maastricht/liaison DataverseNL), Tineke van der Meer (Hogeschool Utrecht), Francisco Romero Pastrana (Rijksuniversiteit Groningen), Jolien Scholten (Vrije Universiteit), Leander van der Spek (Universiteit voor Humanistiek), Ingeborg Verheul (LCRDM)
Derk Arts (Castor), Marlon Domingus (Erasmus Universiteit), Laura Huis in ’t Veld (DANS), Nicole Koster (Universiteit Twente), Karin van der Pal (Leids Universitair Medisch Centrum – LUMC), Alfons Schroten (Universiteit Maastricht/MEMIC)
Hand-out is produced by: Boudewijn van den Berg (LCRDM)
Thanks to all participants for their input to the survey.